Table 4.
Predictors of whether participants would set up an account (n=137)
| Univariable Odds Ratio (p-value) | Multivariable Final Model Odds Ratio (p-value) | ||||
|---|---|---|---|---|---|
| Demographic Factors | Study Cohort | UM Students group | .88 (0.728) | - | |
| Community participants group | Ref | - | |||
| Gender | Female | 1.11 (0.745) | - | ||
| Male | Ref | - | |||
| Race/Ethnicity | African-American | 2.1 (0.138) | - | ||
| Asian or Pacific Islander | .85 (0.685) | - | |||
| Other | Arab or Arab-American | 1.63 (0.470) | - | ||
| Native American | |||||
| Hispanic | |||||
| Other/NR | |||||
| White (not Hispanic) | Ref | ||||
| Education | >15 years | .94 (0.950) | - | ||
| 12-15 years | .75 (0.758) | - | |||
| <12 years | Ref | - | |||
| Age | >55 | 2.48 (0.437) | - | ||
| 46-55 | .83 (0.756) | - | |||
| 36-45 | .83 (0.853) | - | |||
| 26-35 | .99 (0.991) | - | |||
| <25 | Ref | - | |||
| User Experience Factors | Overall Experience | Somewhat or Very Positive | 21.2 (0.050) | 9.23 (0.052) | |
| Neutral (neither positive or negative) | 2.88 (0.349) | 1.70 (0.658) | |||
| Somewhat or Very negative* | Ref | Ref | |||
| Impression of length of time to completion | It took too long | 0.14 (0.003) | - | ||
| It took to long, but it was worthwhile | 0.98 (0.964) | - | |||
| It took about the right amount of time | 0.62 (0.270) | - | |||
| It took less time than I thought it would | Ref | - | |||
| Navigation impression | Somewhat or Very easy* | 6.90 (0.082) | - | ||
| Some parts easy; some more difficult | 3.57 (0.305) | - | |||
| Somewhat or Very difficult* | Ref | - | |||
| Would recommend service to others | Somewhat or very likely | 11.2 (<0.001) | 5.20 (0.010) | ||
| Somewhat or very unlikely* | Ref | Ref | |||
| Reasons for not using a personal health record service | I don't have regular access to the internet | 0.62 (0.736) | - | ||
| I don't want my medical record on the web | 0.44 (0.036) | - | |||
| Other, please specify | 0.77 (0.627) | - | |||
| I don't know how this would work | Ref | - | |||
| Guided or Custom settings preference | Preset preferences | 0.51 (0.159) | - | ||
| Custom preferences | Ref | - | |||
| ID verification: “Would you answer these questions or questions like these?” | Yes | 2.89 (0.006) | 2.34 (0.096) | ||
| No | Ref | Ref | |||
| Consent and Contact Preferences | “Ask me each time my DBS would be used for research.” | Agree/strongly agree | 2.29 (0.027) | 2.20 (0.078) | |
| Disagree/strongly disagree | Ref | Ref | |||
| “Parents should be able to decline having their baby's blood stored for use in research.” | Agree/strongly agree | .58 (0.533) | - | ||
| Disagree/strongly disagree | Ref | - | |||
Criterion for inclusion in step one: α <.10, criterion for inclusion in final model: α <.10